Increasingly, to ensure safe and quality treatment of patients and also to plan for services for the future, NHS organisations are seeking to share information about patients. Each time a new sharing option becomes a possibility, we will notify patients of this and provide you with information so that you can make a choice about sharing. To help you to understand the various levels of sharing, there are leaflets available for each system below. It is complex and you can ask at reception to speak to the practice manager if you are unsure or need additional information before deciding what to do. Please read this detailed information leaflet that incorporates all of the information you need to make an informed choice. This leaflet includes an opt out form for you to use
1. Care Data - Sharing accross all Health and Social Care Services
THIS PROJECT IS ON HOLD UNTIL AUTUMN 2014
Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.
It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so we can see what has worked best.
The information gathered - date of birth, full postcode, NHS Number and gender - will be used to link patient records in a secure system, managed by the HSCIC so your identity is protected. Once this information has been linked a new record will be created. This new record will not contain information that identifies individuals. The type of information shared, and how it is shared, is controlled by law and strict confidentiality rules.
You have a choice. If you are happy for your information to be used in this way you do not have to do anything. If you have any concerns or wish to prevent this from happening, please speak to practice staff or download a copy of the leaflet “How information about you helps us to provide better care” below
You can find out more on the NHS England Care Data website
2. Local Care Record - Sharing in Copeland Only
Our practice has the ability to share some information from your medical records with other health services that provide you with care. This information is more detailed than the Summary Care record (see below) but is still limited and is called a ‘local shared record’.
Medical records are increasingly being stored on computers. If you give permission, the healthcare professionals you visit in the Copeland area can view your shared record or a relevant section of it on a new computer system. This is done through a secure NHS network, not the internet.
Your shared record will contain a summary of your most up-to-date, relevant health information which includes things such as:
- Your recent diagnosis and test results;
- What allergies you have;
- What medications and treatment you currently receive.
By allowing access to your local shared record, you can ensure that healthcare professionals treating you have the most up-to-date and accurate information about your overall health and current treatments. This will allow healthcare staff to give you better advice and provide safer and more effective care. It will help to ensure that mistakes are avoided and can also reduce the need for you to give different health services the same information repeatedly.
At the start of your treatment, you will be asked directly for your permission to view your local shared record. Your local shared record will only be accessed while you are being treated.
You can decline to share your record but once you have done this, access cannot be obtained at the point of emergency treatment.
For more information, please download the ‘Changes to your medical records’ leaflet here.
Download the Question & Answer sheet giving further information.
If you want to discuss sharing sensitive information, or want to disable access to your local shared records, please contact your GP Surgery and ask to speak with the practice manager.
If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery.
3.Summary Care Record - The national sharing of limited information for emergency only
In Nov 2012 the NHS in England introducing the Summary Care Record, which initially is used in emergency care but will be available at other practices nationally in the future. The record will only contain information about any medicines you are taking, allergies you suffer from and any bad reactions to medicines you have had, to ensure those caring for you have enough information to treat you safely.
As with all new systems there are pros and cons to think about. When you speak to an emergency doctor you might overlook something that is important and if they have access to your medical record it might avoid mistakes or problems, although even then, you should be asked to give your consent each time a member of NHS Staff wishes to access your record, unless you are medically unable to do so.
On the other hand, you may have strong views about sharing your personal information and wish to keep your information at the level of this practice. Connecting for Health (CfH), the government agency responsible for the Summary Care Record have agreed with doctors’ leaders that new patients registering with this practice should be able to decide whether or not their information is uploaded to the Central NHS Computer System. For existing patients it is different in that it is assumed that you want your record uploaded to the central NHS Computer System unless you actively opt out.
Your Summary Care Record was created from April 2013 unless you choose to opt out
As a patient you have a choice:
– you do not need to do anything and a Summary Care Record will be created for you. Healthcare staff will ask your permission before they look at your record, except in certain circumstances for example if you are unconscious. If you are the parent or guardian of a child under 16 and feel that they are old enough to understand, then you should make this information available to them.
- No I do not want a Summary Care Record – download and print the opt out form below.
This form should be completed and given to your GP practice.
For more information, telephone the dedicated NHS Summary Care Record Information Line on
0300 123 3020or visit the website at www.nhscarerecords.nhs.uk, where you can find information in other formats and languages.
You can choose not to have a Summary Care Record and you can change your mind at any time by informing your GP practice.
For further information visit the Connecting for Health Website